NOTICE: This health information was not created by the University of Michigan Health System (UMHS) and may not necessarily reflect specific UMHS practices. For medical advice relating to your personal condition, please consult your doctor. Complete disclaimer
Healthwise Knowledgebase
General Health Topics - Shc
Search All Health Topics Print This Page  Email to a Friend 
|
| This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site. |
Children's Tumor Foundation
(BILINGUAL) National. 50 chapters. Founded 1978. For patients with neurofibromatosis and their families. Promotes and supports research on the causes of, and cure for NF. Provides information, quarterly newsletter, assistance and education. Dues $40/year. Professional grants awarded for research.
Write:
Children's Tumor Foundation
95 Pine St., 16th Fl.
New York, NY 10005
Voice: 1-800-323-7938
Fax: 212-747-0004
Website: http://www.ctf.org
E-mail: info@ctf.org
Verified: 10/8/2008
Neurofibromatosis, Inc.
National. 10 regional groups. Founded 1988. Dedicated to individuals and families affected by the neurofibromatoses (NF-1, NF-2 and Schwannomatosis) through education, support, a summer camp, clinical and research programs. Newsletter, networking, printed materials, phone support, information and referrals. Assistance in starting groups.
Write:
Neurofibromatosis, Inc.
P.O. Box 66884
Chicago, IL 66884
Voice: 630-627-1115 or 1-800-942-6825
Website: http://www.nfinc.org
E-mail: nfinfo@nfinc.org
Verified: 10/14/2008
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org
Copyright © 2009 American Self-Help Group Clearinghouse. All rights reserved.
 Top of Page |
